Domestic Health Policy Analysis | Center for Health and Biosciences | Child Health Policy | Issue Brief
Child health, big data & ethics
May 23, 2017 | Quianta Moore

Table of Contents
Author(s)
Quianta Moore
Nonresident Fellow in Child Health Policy | Executive Director, The Hackett Center for Mental HealthBy Quianta Moore, Tara Blagg and Hannah Todd
The Advancing Care for Exceptional Kids Act proposes a national database that would serve as a centralized source of information on children with medically complex conditions. The aim is to improve treatment and care coordination. The authors of this brief argue, however, that the database could put children and their families at risk of discrimination by making their health information public, and therefore accessible to employers and health insurers.