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42 Results
Child staring out of a window
Ethical Considerations of a National Database for Children With Medical Complexity
The Advancing Care for Exceptional Kids Act proposes a national database that would serve as a centralized source of information on children with medically complex conditions. The aim is to improve treatment and care coordination. The authors of this brief argue, however, that the database could put children and their families at risk of discrimination by making their health information public, and therefore accessible to employers and health insurers.
Quianta Moore, Tara Blagg, Hannah Todd May 23, 2017
Stethoscope on top of chart
The Ethics of Conducting Molecular Autopsies in Cases of Sudden Death in the Young
The "molecular autopsy," or the collection of blood and tissue for DNA analysis, is an increasingly pervasive tool in investigating sudden death in the young. The authors offer recommendations that address ethical and policy issues that arise when molecular autopsies are conducted as part of a death investigation by medical examiner or coroner offices.
Quianta Moore July 13, 2016
US Capitol
A Need for Renewed and Cohesive U.S. Policy on Cord Blood Banking
While the Food and Drug Administration currently regulates storage and use of cord blood (CB) in the United States, other state and federal guidelines on CB education, awareness and ethical considerations remain variable, and no mandatory international guidelines exist. To help organize and coordinate efforts across the United States and other nations, policymakers should implement regulations for high quality standards for both private and public CB banks.
Monica M. Matsumoto, Kirstin R.W. Matthews August 4, 2015