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36 Results
Child staring out of a window
Ethical Considerations of a National Database for Children With Medical Complexity
The Advancing Care for Exceptional Kids Act proposes a national database that would serve as a centralized source of information on children with medically complex conditions. The aim is to improve treatment and care coordination. The authors of this brief argue, however, that the database could put children and their families at risk of discrimination by making their health information public, and therefore accessible to employers and health insurers.
Quianta Moore, Tara Blagg, Hannah Todd May 23, 2017
Child staring out of a window
Children With Medical Complexity: Can Utilizing Telemedicine in the Patient-centered Medical Home Model Reduce Cost of Care?
Children with medical complexity (CMC), defined as children who have chronic medical conditions that can be expected to last at least one year and to require speciality pediatric care, depend on technology and multiple providers for their acute and daily health needs. The authors explore how the use of telemedicine, coupled with a patient-centered medical home model of care, can improve the efficacy and efficiency of care for CMC.
Hannah Todd, Quianta Moore, Tara Blagg May 16, 2017
Development of an Evidence-based Early Childhood Development Strategy
Increasingly, stakeholders from diverse sectors acknowledge there is a window of opportunity early in life in which the brain is particularly susceptible to effective interventions with measurable long-term benefits. The authors undertook this paper with the principal purpose of setting priorities for investment in early childhood brain development.
Quianta Moore September 1, 2016
Stethoscope on top of chart
The Ethics of Conducting Molecular Autopsies in Cases of Sudden Death in the Young
The "molecular autopsy," or the collection of blood and tissue for DNA analysis, is an increasingly pervasive tool in investigating sudden death in the young. The authors offer recommendations that address ethical and policy issues that arise when molecular autopsies are conducted as part of a death investigation by medical examiner or coroner offices.
Quianta Moore July 13, 2016